In addition to access to care, I wish for additional access to education!
Publications, research and data on Primary Hyperoxaluria (PH) is so limited and I hope one day information about PH, specifically Type 3, is more accessible. Trying to educate our family and friends on our daughter’s PH3 diagnosis has been difficult as our own knowledge is so limited and we have little supporting resources to share.
I am so thankful for the education the Oxalosis and Hyperoxaluria Foundation provides to this community!