This is an abridged submission. Please visit www.hyperoxaluriaweek.ohf.org/story for Kanishka’s full and very powerful story.
In January 2009 – June 2009 a black shadow came to our life with heart breaking news that Kanishka had Primary Hyperoxaluria Type- I. Finally, on 19.1.2011 we received a call from IKEM that Kanishka has been gifted by God for having combined transplantation. On 20.1.2011 very early morning around 5.30 am Kanishka had been taken for his dialysis. But on 19th May 2011 Kanishka didn’t wake up after his dialysis. Therefore, as a bereaved mother I have a request to all the medical practitioners, researchers to identify a better solution than combined transplantation which is really not an ultimate solution. At whatever time I wish to write something about Kanishka the first thing comes in my mind: CARE. He was a very caring personality. To fulfill the cherish idea of a great boy, as a mother and as a parent we established a foundation in 2013 to improve the lives of rare kidney stone disease and Hyperoxaluria for better care and outcomes.
Once again thanks to Kim Hollander for your understanding and giving an opportunity to share our only beloved son Kanishka’s journey with PH.