November 2-7, 2026
Hyperoxaluria
Awareness Week
Uniting the hyperoxaluria community worldwide to inspire change
Shine a light on Hyperoxaluria!
Unite the Hyperoxaluria Community Around the World!
Shine a Light Map
Click on the “+” icon to add your light to the map!
Awareness Week 2026 Calls to Action
Facebook Frame
Help spread hyperoxaluria awareness on Facebook — download the Facebook frame from our toolkit and add it to your profile photo!
Shine Your Light!
Every light represents someone who cares about the hyperoxaluria community. Add your light to our map to show your support, raise awareness, and help shine a light on everyone affected by hyperoxaluria. Together, we can make our community visible and remind patients and families that they are not alone.
Hyperoxaluria Global Alliance
Exciting Global Alliance announcement coming Friday, November 6! Stay tuned to learn more.
Keep the Light On
As Hyperoxaluria Awareness Week comes to a close, help keep the light shining all year long. Your support fuels OHF’s ongoing work to advance research, strengthen patient care, and connect individuals and families affected by hyperoxaluria. Together, we can keep awareness growing and hope moving forward.
Digital Resources
Find here all the materials you need to raise awareness for #hyperoxaluria and instigate change for people living with this rare disease. Download the Digital Toolkit for social media posts, posters, a Facebook frame and more!
Included in the toolkit:
- Facebook frame and banner
- HAW social media templates
- HAW logo
- Email signature
- Fundraising ideas
- Zoom/Teams background
Share on Social
Share your Shine a Light message and photo on social media with the hashtags #ShineALightOnHyperoxaluria #HAW2026 #Hyperoxaluria to spread awareness. Don’t forget to follow @ohfoundation on Instagram, @OHFTweet on X, and TheOHF on Facebook and sign up for updates!
Welcome to the Hyperoxaluria Global Alliance!
The Hyperoxaluria Global Alliance brings together patient advocates and organizations from across the world, united by a determination to improve the lives of people impacted by hyperoxaluria and, ultimately, to find a cure.
We are a global community without boundaries. Helping all those affected by hyperoxaluria, no matter who they are or where they live.
Today, the Global Alliance includes representation from 20+ countries. We are continually looking to grow our community and remain open to new members.
We welcome applications from individuals and organizations across the world who share our vision.
Family Corner
Raise awareness with family resources at your school, with your healthcare provider, or within your community!
Spotlight on! What does #Hyperoxaluria mean to those in the OHF community?
Shining a Light: From Diagnosis to Care
This Hyperoxaluria Awareness Week, we’re shining a light on one patient’s journey and the specialized care and research advancing the future of primary hyperoxaluria (PH).
Watch to learn how one OHF Care Center is bringing together clinical expertise, collaboration, and innovative research to improve diagnosis, treatment, and care for individuals living with hyperoxaluria.
Sponsors
Thank you to Hyperoxaluria Awareness Week’s Sponsors!
Champion
Partner
