Hyperoxaluria
Awareness Week

Your strength, resilience, and courage inspire us every single day. This journey isn’t easy, but together we’re raising awareness, pushing for better treatments, and supporting each other through every challenge. Keep fighting, keep hoping and know that you are never alone in this battle. #hyperoxaluria

FROM: Kim

Our beloved SON ” KANISHKA BINAYAK SAHA” & His beloved Father: Krishna Kanta Saha

My All Family Members & Oxalosis Hyperoxaluria Foundation.

Feeling for Healing

Ph Global summit was-
Feeling for healing, the unbearable pain.
Ph Global summit was-
Feeling for healing, much information to gain.
Ph Global summit was-
Feeling for healing, and we met each other
The PH fighters are the real warriors.
We share our son Kaishka’s story,
That makes us happy and life gets glory.
We share our opinions and views,
That brings a piece of great news.
We create a new Community Group,
None other than the PH group.
Ph Global Summit presented us with a family,
Who sends us blessings of heavenly.
Kim Hollander and Julie Bertarelli
You are our Dear, even though you are far,
But we feel like you are always near.
Thanks to the Oxalosis & Hyperoxaluria Foundation
For providing this wonderful Scope.
To present the Kanishka Binayak Memorial Foundation
Which is our life’s only Hope.

FROM: Nibedita

Tutti Insieme per sostenere la ricerca che è la nostra speranza di vita è il nostro futuro

FROM: Luana

Combattiamo insieme ai ricercatori per un futuro migliore !

FROM: Caterina

Dalton K,
Stay strong young man. You have just begun your life. Keep your focus on the future. You have everything you need to win this battle called “life” inside of you. My prayers are with you and your sweet wife. May God Bless you.

Lisa Harvey

FROM: Lisa

Tiffany R.,
You are a ray of sunshine! Your sweetness and kindness shine through all the pain and difficulty you have had and make all those around you feel better. May God bless you and your family.

FROM: Lisa

You are strong! You are brave! You have a community of support to help you and you are not alone. It will be ok!

FROM: MaryLynne

We will all get through it
Keep strong everyone

FROM: Jake

we’ll keep fighting togheter!

FROM: Giorgia

Non ci arrendiamo e continuiamo a combattere sostenendo e mettendoci a disposizione della ricerca

FROM: Doranna

Remember, you’re not alone. Together, we stand with you—holding hope for breakthroughs, for healing, and for brighter tomorrows. Keep fighting, and know that there are countless hearts cheering you on.

FROM: Julie

Thinking of all Hyperoxaluria Warriors in the Hyperoxaluria community around the globe!

FROM: Maya

We are Hyperoxaluria Warriors! Thank you to OHF for serving with dedication. Your advocacy is appreciated!!! In honor of Dr. Matthew Breeggemann. We love you! Grandma Jane and Mother Laura.

FROM: Laura

Hyperoxaluria picked the wrong people to mess with as we are stronger and braver than we believe.
Brighter than you think and loved more than you know.
Keep smiling, just remember we will never walk alone.
We are always a stone throw away from being helped now that we are a team of Warriors and together we can get to our Goal.

FROM: Ghulam

You are a warrior, you are strong and most of all you are so loved. With the help of the OHF community, we can overcome any obstacle that stands in our way. #hyperoxaluria

FROM: Paulina

To all the hyperoxaluria warriors out there: Your dedication and commitment to improving the lives of patients living with this disease is nothing short of inspiring. Keep doing what you’re doing – you truly are making a difference.

FROM: Kari

“was dem Einzelnen nicht möglich ist, das schaffen viele” F. W. Raiffeisen

Wir wünschen allen Hyperoxaluria Kämpferinnen und Kämpfer unterstützende Menschen an ihrer Seite!
Wir sind unsagbar dankbar, für jeden einzelnen der mit uns mitgekämpft hat und es auch weiterhin tun wird!

“What is not possible for one person, many can achieve” FW Raiffeisen

We wish all Hyperoxaluria fighters supportive people at their side!
We are incredibly grateful to each and every one of you who has fought with us and will continue to do so!

FROM: Deborah

A Message of Hope from a Libyan  🇱🇾 – German 🇩🇪 Kid Living with PH

Hi everyone,

I’m 14 years old, and I have primary hyperoxaluria (PH). I’m Libyan and German, and there was a time when PH made things really tough. I had to be careful with my health, and it felt like everything was about managing my condition. But now, things are so much better. With the right treatment, my oxalate levels are normal, and I’m back in school here in Germany, living just like other kids. Now, I just have to take my medication, and it has made a huge difference.

I am so grateful to all the amazing people who saved my life at the University Klinik in Essen, Germany. And to OHF, thank you for all the support you give kids like me all over the world. Most of all, I want to thank my family—my wonderful Papa and Mama and my kind brothers. They’ve been with me through everything, and their love and support helped me get to where I am today.

To other kids with PH, I want you to know that even when things feel hard, there’s hope. With time and the right treatments, things can get better. PH is part of our lives, but it doesn’t have to control everything. Stay strong and don’t give up, because there are so many people working to help us live better lives.

So keep going, stay hopeful, and know that life with PH can improve. You’re not alone, and there are people everywhere who understand what you’re going through. I’m here with you, cheering you on, and believing in you.

— A Libyan 🇱🇾 – German 🇩🇪 kid with PH – German 🇩🇪 Kid Living with PH

FROM: Muhammad

Let’s spread awareness for Hyperoxaluria! This is a very rare disease that needs our voice around the world in order to find a cure! I am forever grateful for having a second chance to live. Thank you OHF for being the best foundation in the world💙

FROM: Maria Clara

My message: As a father of a 10-year-old girl with PH1, and as a husband, my wife also has PH1 and suffers from kidney failure and undergoes kidney dialysis 3 times a week. My message is for everyone to stay together and I pray for everyone to get treatment and enjoy health because it is mentally and physically tiring and very difficult for every family that has a person suffering from this disease. Greetings to all of you. Your friend Nabil… the father of the little girl, Reyam, is from Iraq.

FROM: Nabeel

I am the mother of Kristine who was diagnosen with ph1 at the age of 5 . She is noe 37 years old , mother of two Girls 15 and 12 years old . She has all here life been struggeling with kidney Stones. During the last years a lot of trouble with extra symptomer.

FROM: Asthrid

To the patients, caregivers, siblings, relatives, loved ones of all who suffer from Hyperoxaluria related diagnosis:

We SEE you. We know you are suffering and feeling isolated and desperate for help. We know how challenging it is to get attention from those who are supposed to be caring for your medical needs. We know that many of you live in areas where there is no support or assistance or treatment for this disease. We know you feel you are overlooked and being ignored. We understand your desperation and and fear.

We are working tirelessly for every single one of you. We do not have all the answers but we promise to stay with you at every step of your journey. We promise to work alongside you and with you to help with your specific needs. Please reach out and be part of this community. Do not suffer alone or in silence. Our PH Community is STRONG and DETERMINED. You are NOT alone. You MATTER. There are so many people who are fighting for you.

Be STRONG. Have HOPE. Stay CONNECTED.

-The Ouimet Family
Kristi
Kelly
Carswell
Patrick
Matthew

FROM: Kristi

Hyperoxaluria can be a battle that no one knows you’re fighting. It may not be noticeable on the outside, even on bad days. Take care of yourself, remember to advocate, remember to raise awareness and remember you have a whole community behind you.

FROM: Mariella