To the patients, caregivers, siblings, relatives, loved ones of all who suffer from Hyperoxaluria related diagnosis:
We SEE you. We know you are suffering and feeling isolated and desperate for help. We know how challenging it is to get attention from those who are supposed to be caring for your medical needs. We know that many of you live in areas where there is no support or assistance or treatment for this disease. We know you feel you are overlooked and being ignored. We understand your desperation and and fear.
We are working tirelessly for every single one of you. We do not have all the answers but we promise to stay with you at every step of your journey. We promise to work alongside you and with you to help with your specific needs. Please reach out and be part of this community. Do not suffer alone or in silence. Our PH Community is STRONG and DETERMINED. You are NOT alone. You MATTER. There are so many people who are fighting for you.
Be STRONG. Have HOPE. Stay CONNECTED.
-The Ouimet Family
Kristi
Kelly
Carswell
Patrick
Matthew