A Message of Hope from a Libyan  🇱🇾 – German 🇩🇪 Kid Living with PH

Hi everyone,

I’m 14 years old, and I have primary hyperoxaluria (PH). I’m Libyan and German, and there was a time when PH made things really tough. I had to be careful with my health, and it felt like everything was about managing my condition. But now, things are so much better. With the right treatment, my oxalate levels are normal, and I’m back in school here in Germany, living just like other kids. Now, I just have to take my medication, and it has made a huge difference.

I am so grateful to all the amazing people who saved my life at the University Klinik in Essen, Germany. And to OHF, thank you for all the support you give kids like me all over the world. Most of all, I want to thank my family—my wonderful Papa and Mama and my kind brothers. They’ve been with me through everything, and their love and support helped me get to where I am today.

To other kids with PH, I want you to know that even when things feel hard, there’s hope. With time and the right treatments, things can get better. PH is part of our lives, but it doesn’t have to control everything. Stay strong and don’t give up, because there are so many people working to help us live better lives.

So keep going, stay hopeful, and know that life with PH can improve. You’re not alone, and there are people everywhere who understand what you’re going through. I’m here with you, cheering you on, and believing in you.

— A Libyan 🇱🇾 – German 🇩🇪 kid with PH – German 🇩🇪 Kid Living with PH