November 3-8, 2025
Hyperoxaluria
Awareness Week
Uniting the hyperoxaluria community worldwide to inspire change
Share Why YOU Care about Rare!
Unite the Hyperoxaluria Community Around the World!
Show your support! Create your own postcard saying why you care about rare and we’ll share it here with the global community!
HAW 2025 Calls to Action
Facebook Frame
Make Your Facebook Frame
Help spread hyperoxaluria awareness on Facebook — download the Facebook frame from our toolkit and add it to your profile photo!
Live Webinar
Living with Hyperoxaluria: Looking After Your Emotional Wellbeing
The session, led by Rareminds, the UK’s first specialist nonprofit rare disease counseling service, will explore common emotional challenges of living with a rare disease, offer practical strategies and tools for coping, and provide a supportive space to connect with others.
The details:
- Friday, November 7, 2025
- 12:00 – 2:00 pm ET
- Zoom (link provided following registration)
Download Materials
Find here all the materials you need to raise awareness for #hyperoxaluria and instigate change for people living with this rare disease. Download the Digital Toolkit for social media posts, posters, a Facebook frame and more!
Share on Social
Share your In Rare We Care message and photo on social media with #hyperoxaluria to spread awareness. Don’t forget to follow @ohfoundation on Instagram, @OHFTweet on X, and TheOHF on Facebook and sign up for updates!
Welcome to the Hyperoxaluria Global Alliance!
The Hyperoxaluria Global Alliance brings together patient advocates and organizations from across the world, united by a determination to improve the lives of people impacted by hyperoxaluria and, ultimately, to find a cure.
We are a global community without boundaries. Helping all those affected by hyperoxaluria, no matter who they are or where they live.
Today, the Global Alliance includes representation from 14 countries. We are continually looking to grow our community and remain open to new members.
We welcome applications from individuals and organizations across the world who share our vision.
Family Corner
Raise awareness with family resources at your school, with your healthcare provider, or within your community!
In their own words! What does #Hyperoxaluria mean to young adults in the OHF community?
Making Strides Together in Hyperoxaluria
Hyperoxaluria, a condition that can manifest at any age, is often characterized by elevated oxalate levels and recurrent kidney stones in adults, or kidney stones in children. Get to know the dedicated researchers collaborating with the OHF and driving progress in hyperoxaluria today! Watch the video.
Sponsors
Thank you to Hyperoxaluria Awareness Week’s Sponsors!
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