“New beginnings are in order, and you are bound to feel some level of excitement as new chances come your way.” —Oscar Auliq-Ice, author

May the advances in discovery and treatment for the community continue!

I hope that people whose lives are affected by PH always have a platform to share their voice and be heard. Thank you OHF for all that you do! I will strive to do my part in clearly communicating the scientific research being done.

The OHF team is here for you. All that we do is to improve the lives of patients and families dealing with PH, across our wide country, north, south, east and west!

Abigail is a thriving three year old because she has had access to lumasiran, a novel drug in the treatment of PH1. Without it, her life trajectory would be significantly altered. Please consider Abigail’s well-being in your reimbursement criteria for public funding.

That everyone around the globe has access to treatment, medication, dialysis, and life saving transplants. Too many people are unable to to access these things currently and we need to change that.

I wish to educate others who have never heard of this rare genetic disorder and bring light to the cause in hopes that with more people aware the better we can fight to find a cure!