The true Hero’s of this world, are those who actively research, drive to, stand up for, and do everything possible for the one’s they love, when they suffer from a rare disease that goes unidentified or treated. To you and those you love, we stand behind you, aside of you, and with you every step of the way!
to make treatment accessible to all kids with PH1 all over the world and help them live happy and healthy lives.
As a scientist at Alnylam, I just wanted to thank the PH1 community for inspiring us each day!! You are always in our thoughts.
I hope for everyone with PH to have early and continuous access to adequate medical care and perhaps in a relatively short period of time to find a definitive cure for this condition.
The PH Community continues to inspire me every day in my work at Novo Nordisk/Dicerna and it is exciting that the Community has involved itself with companies that are working on various treatments. Keep Hyperpoxaluria Awareness going!!!
I believe and see a future with a cure that will benefit those inflicted. We as the community are hopeful, that this is not the end. Things will get better, and we shall all rejoice in the end. Let’s all work towards beating this as a community. I lost my son from PH. However today I am part of this community for LIFE.